Pulmonary Hypertension Association of Canada have joined forces with 29 patient groups across the globe to try and set a new Guinness World Record for the largest collection of lipstick prints (preferably blue) to try and raise the profile of PH in a global campaign called PuckerUp4PH.
Blue lips, or cyanosis, as it is also known, can be a sign that someone has PH so a Blue Lips logo was designed to try and help build recognition of the disease.
This campaign is important because lack of awareness of PH is one of the main reasons why it can take 2 years for the condition to be diagnosed. If not treated, approximately half of PH patients die within the same period. For those who are diagnosed, it can make you feel very isolated when no one around you knows about what you’re living with.
There is no cure for PH, but thanks to relatively new treatments, people with PH are living longer and with a better quality of life. The important thing is getting people diagnosed early, which is why increased awareness of PH is so vital.
This past week, the Toronto support group banded together at their most recent support group meeting to PuckerUp4PH, collecting 25 kisses from those attending. They are not done yet however, with the exercise generating much excitement in the group and many members taking kits home with them to extend the campaign into their own communities.